I’m 23 years old, and I’m very much in need of help. I’ve been dealing with endometriosis, but I didn’t know what it was until I diagnosed after a laparoscopy last April. I also have aspergers syndome, so this entire experience has left me very near wanting to kill myself in pain and frustration.

For the past two years, I had been dealing with debilitating rectal pain during my periods. It it absolutely earth-shattering. I cannot sit, move, walk, or even go to the bathroom without screaming in pain. My flow was so heavy that I had to wear adult diapers just to catch the flow, and I missed so much work and school. My last gyn put me on birth control, and that lightened my flow and the pain wasn’t as bad, but it was still there and extremely uncomfortable. I cried myself to sleep at night because of the pain. A colonoscopy in Oct 2010 ruled out anything wrong with my colon or intestines, and I’ve had five or six in-office rectal exams with that same colorectal surgeon. My last OBGYN gave me two laparoscopies, one in Feb 2010 and another in Jan 2011. Both times he said he didn’t find anything wrong, even though obviously there was something wrong. Then in February 2011, the pain started occuring even when I wasn’t on my period. I told my doctor, and finally in March he refused to see me again and told me to find another doctor because he didn’t know what was wrong with me. Safe to say I was in tears and depressed for a very long time.

I went to see a new OBGYN in April 2011. He is a very young doctor, graduated in 2006, and I like him a lot. The attention and understanding he gives me is like day compared to the night of my last doctor. He did a pelvic exam and a pap smear, and I was leaping off the table in pain, trying to keep from screaming, but it didn’t really work. He could tell I was in excrutiating pain. He put me on the Depo shot to stop my periods, and I’ve been spotting ever since. I’m due for my second injection this month (June 2011). We decided to do another laparoscopy (April 2011), because my last doctor never sent over my other medical records for him to see. After I woke up, he told me that I had stage 2 endo with the majority of it on my colon. I was shocked, because twice my last doctor had checked for just that condition, and hadn’t found anything. This was just mere months before this last procedure. I felt absolutely cheated and dumbfounded. The new doc burned off everything that he could see, and said that should take care of my pain, and that after the Depo started kicking in, I should start to feel better.

It has been a month since my procedure, and I am still in pain. It’s worse during my period, obviously, but every minute of every single day, I have trouble sitting, walking, or doing any kind of physical activity. There is pain and pressurein my rectum all the time. If I have any kind of hard stool coming out, or if I haven’t had a bowel movement yet that day, it’s extremely irritating and uncomfortale. It hurts to have a bowel movement at all. It feels like my anal muscles are constantly straining to do their duty. I’m trying to become sexually active, and every time my boyfriend tries to penetrate, I feel like something is being pushed out of my rectum, like I need to have a bowel movement, and it hurts like h***. I can hardly have a bowel movement by myself, I always have to use laxatives or something to soften it up, but the frequent soft stools are making my hemorrhoids flare up again, and that causes even more pain.

The majority of the endo was on my rectum, or at least that was where most of the scare tissue was. Why am I still in this much pain a month after my procedure? The pain never went away at all. He told me it was just that I was hurting because of having the endo removed, but certainly it shouldn’t take this long to heal? And it’s the exact same pain, only now I’m having trouble going to the bathroom by myself. I use laxatives and suppositories to help me have a bowel movement, but I can hardly stick one in my rectum because I feel so swollen inside there. I want to have a hysterectomy, at least have my uterus removed, but my doctor doesn’t want to do that. I am very young, but I do not want children. I have aspergers, a mental disorder, and a very bad history of breast cancer and heart disease in my family, so in my opinion, it would be irresponsible of me to have children in the first place. My doctor knows this, but he is still hesitant. He wants me to see a pain specialist, but I’m sick of covering up the pain. I want to know how to fix it as much as I can! I don’t expect a cure, but certainly there is something else going on that’s still causing me these problems!

I’m sorry if this was TMI. I’ve just been down this road so many times and reiterated this story to so many people that I’m at my wit’s end. I just want to have some som

Question stimulated by the book "Living With Lung and Colon Endometriosis: Catamenial Pneumothorax by Glynis D. Wallace.

I had been getting dizzy and nauseous with rectal pain. At first i thought it might be dehydration because of BC or a bladder infection or even the endometriosis. Everything has checked out fine. I did notice that i get the same feeling if i overload on junk food or even water. Could it really just be indigestion?
Side note: Theres gas but that may just be one of those random things.

I am a 31 year old female. I have suffered with painful menstrual cramps and frequent urination (as in every 15 minutes) since I was a teenager. I got married 3 years ago and found that additionally, intercourse is excruciatingly painful for me. After seeing many doctors who told me that it was all in my head, I needed to see a psychiatrist, etc, I was referred to a urologist who found I have an ulcerated bladder and diagnosed me with interstitial cystitis, and then to a obgyn who did a laparoscopy and found endometriosis, which he removed. I continue to have painful intercourse. I feels like somebody is stabbing me in the rectal area with a knife when my husband tries to enter (and he is a very gentle and patient man); and then for the next several days will continue to feel like something knife-sharp is trying to exit my body through my butt. The doctors have told me they’ve found everything they can find and done everything they can do. This is not in my head, the pain is real. I feel desperate, we have been married 3 years now and I know he feels rejected. Has anybody else experienced this? Any suggestions?

I was recently hospitalized for problems with my ovaries (that’s a whole other story), but as I was describing my symptoms to the doctor (shooting pain that started in my lower abdomen and traveled all the way to my rectum and even the tops of my inner thighs), she gave me a name for this symptom. It was a really long and weird word that started with the letter "M" I believe. It had nothing to do with my ovaries, it was just a symptom that some girls get with their periods. I can’t remember what it was called and it’s driving me crazy! Any ideas??
It’s not endometriosis…I had a laparoscopy done and there was only a tiny amount that they removed…it was a really silly word that the doctor described as a syndrome. Thanks anyways!

I’m noticing more and more fellow females around me having great bouts of excruciating stomach aches, and being diagnosed with either IBS or Endometriosis, and being prescribed birth pills, peppermint oil pills, etc. All just like me. So I wanted to know if this is a big growing epidemic around other communities…

have been seeing and endocronologist for several months trying to get to the bottom of some sever issues that have been going on.
Between 15 and 16 i gained over 100 pounds and have since continued to gain weight. I also have had elivated cortisol, and testostrone levels, Irregular menstral cycles, and a number of various of problems.
Recently they also discovered a mass on my adernal gland, and diagnosed me with "pre-diabetes"
My endocronolgist has chalked this all up to having PCOS.

Previously a doctor first diagnosed me with endometriosis, then also said i had PCOS.

For about the last 3 months i have been having a new arrary of symptoms that did not go along with the PCOS also.
It started with me having pain in my hip joint, then proceeded to overall pelvic pain.
This further mutated into cronic pelvic, lower back and leg pain.
Which gets nearly unbearable with my menstral cycles.
Although they have always been irregualar, lately they have also become worse than ever.
I will have 2 week long periods that are litterally like turning on a sink from the moment they hit till the moment they stop, and then will come back only 2 weeks after i have stopped. (sorry to be so graphic)
The final problem is that i have been having endless cycles of constipation and diareah accompanied by sharp pains in my rectal area. Also when i cough, sneeze, or even move sometimes, i feel a sharp tug on my pelvic region (behind/below my uterus i think), or in my lower back

Is it possible these could be endometriosis? can you have both PCOS and endometriosis together? Could the PCOS be causing these problems?

Does anyone have any suggestions about what is going on with my body?

I do plan to address these problems with my doctor, but i am currently at school 4 hours from home.

The title pretty much sums it up!

I was searching around on google and it said a few different things.
My first question, can endometriosis cause rectal pain? And if it does, does the endo have to be on the rectum for it to be painful or can it be on the tissue aroun it?

It also said sometimes your uterus can lay on your rectum and sometimes it said you can have an enlarged uterus causing the pain. Almost everythin the treatment was a hysterectomy or some pretty potent narcotics. I also have really awful kidney pain during menstruation.
I’d really like to avoid a hysterectomy or even a partial hysterectomy because I’m only 18 and dream of having a family everyday. I guess this just really scared me. I also would prefer not to be on narcotics for extende amounts of time.
I’ve tried birth control and it made the pain stop but i really hated te side affects. But would be willing(I guess) to go back on it for a while.
I know I need to get to yhe doctor, I’m trying to just at te moment can’t.

And also, I have kidney stones and IBS and I know I’m being hopeful but is it possible my symptoms are just from that and not endo?

Thanks.

My 14 year old child is having rectal bleeding only during her periods and I think she is getting a hemorrhoid because she has been feeling pain. What should I do? What is it thats causing it?
She sometimes gets random dizziness and rarely, her ovary hurts, but its always usually when her period is near. Can she be having Endometriosis?

Though I’ve never been uber-regular, my periods have been very reliable lately. The past two months, though, I have missed them. (There is NO possibility that I am pregnant, so don’t ask.)

I have gotten my usual cramps the past two months, though, plus the chest pains that tend to accompany them. No bleeding, though.

Today, I developed severe rectal pains that were exasperated by applying pressure to a number of spots on my lower abdomen, especially in the form of sitting/laying down.

Could this possibly be endometriosis, and, if so, could this explain my missed periods?

Thanks.

my right lower side where small and large intestines meet has been hurting for six months. dr. thought it was my endometriosis and took my female organs out. I am still in the same pain.

For the past year or so, I get intense pain whenever I am on my period. The pain is definetely coming from my rectum area. It is a sharp pain and I can feel my feces trying to pass through. I do not have the urge to go when this happens. I think it is the feces passing from the large intestine to the colon, but I can't be sure. What is causing this? Should I see my doctor? Could it be IBS or endometriosis? The pain is getting worse and when I get it, I just feel like keeling over and falling on the floor because it hurts so bad.