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	<title>Comments on: Mystery Diagnosis Needed: Unexplained groin, pelvic, and bone pain. Please Help!!?</title>
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	<description>Colon Health Questions Answered And Colon Cleaning Information</description>
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		<title>By: Chiropractor Lakewood CO Dr. Scott Brown</title>
		<link>http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html/comment-page-1#comment-32120</link>
		<dc:creator>Chiropractor Lakewood CO Dr. Scott Brown</dc:creator>
		<pubDate>Wed, 06 Jul 2011 22:04:56 +0000</pubDate>
		<guid isPermaLink="false">http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html#comment-32120</guid>
		<description>Great discussion and a timely one. More and more gut problems with multiple causes.</description>
		<content:encoded><![CDATA[<p>Great discussion and a timely one. More and more gut problems with multiple causes.</p>
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		<title>By: Bruce Alan</title>
		<link>http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html/comment-page-1#comment-20937</link>
		<dc:creator>Bruce Alan</dc:creator>
		<pubDate>Wed, 19 Jan 2011 22:06:31 +0000</pubDate>
		<guid isPermaLink="false">http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html#comment-20937</guid>
		<description>Some time back, several surgeons in France developed a specialized surgical procedure for freeing the pudental nerve from entrapment, with good results for many long-suffering pelvic pain patients. Their success was such that they established a training program for surgeon seeking to learn the surgery. I know that there is a surgery practice, in Texas I believe, which has been drawing patients from around the country to obtain the surgery.
As I understand it, these US surgeons have had success rates comparable to their French instructors and you will find very positive comments from those who have traveled far to obtain the surgery.

Nerve blocks using lidocaine and corticosteroids can provide wonderful relief but they are only rarely a permanent fix.  As such, they are or should be regarded as more of a diagnostic tool than a potential cure. Of course, the nerve could simply be permanently killed using alcohol instead of anesthetics, but that is a drastic solution and almost draconian given the development of the pudental nerve surgery.

It seems to me that the second set of injections, focused as they were upon the pelvis as well as elsewhere was a huge clue that the pudental nerve is at least partially causative. Just why the radiologist did not repeat the more successful administration on the third round is quite beyond me. It would appear, though, that he/she inadvertently created a control for placebo effect in his first and third administrations. 
Google French surgery pudental entrapment, something like that and I&#039;m certain you&#039;ll locate the folks I&#039;ve spoken of. And please, stay with this patient and try hard. Also, remember that, like most pelvic pain issues, the gender of the patient should be irrelevant. The idea that the medical profession has countenanced Women&#039;Health as a de facto specialty beyond even the Ob-Gyn specialty has more and more struck me as a violation of federal law.</description>
		<content:encoded><![CDATA[<p>Some time back, several surgeons in France developed a specialized surgical procedure for freeing the pudental nerve from entrapment, with good results for many long-suffering pelvic pain patients. Their success was such that they established a training program for surgeon seeking to learn the surgery. I know that there is a surgery practice, in Texas I believe, which has been drawing patients from around the country to obtain the surgery.<br />
As I understand it, these US surgeons have had success rates comparable to their French instructors and you will find very positive comments from those who have traveled far to obtain the surgery.</p>
<p>Nerve blocks using lidocaine and corticosteroids can provide wonderful relief but they are only rarely a permanent fix.  As such, they are or should be regarded as more of a diagnostic tool than a potential cure. Of course, the nerve could simply be permanently killed using alcohol instead of anesthetics, but that is a drastic solution and almost draconian given the development of the pudental nerve surgery.</p>
<p>It seems to me that the second set of injections, focused as they were upon the pelvis as well as elsewhere was a huge clue that the pudental nerve is at least partially causative. Just why the radiologist did not repeat the more successful administration on the third round is quite beyond me. It would appear, though, that he/she inadvertently created a control for placebo effect in his first and third administrations.<br />
Google French surgery pudental entrapment, something like that and I&#8217;m certain you&#8217;ll locate the folks I&#8217;ve spoken of. And please, stay with this patient and try hard. Also, remember that, like most pelvic pain issues, the gender of the patient should be irrelevant. The idea that the medical profession has countenanced Women&#8217;Health as a de facto specialty beyond even the Ob-Gyn specialty has more and more struck me as a violation of federal law.</p>
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		<title>By: Felicity</title>
		<link>http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html/comment-page-1#comment-17039</link>
		<dc:creator>Felicity</dc:creator>
		<pubDate>Wed, 01 Dec 2010 06:04:21 +0000</pubDate>
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		<description>Hi I have had a pain in the right side of the vaginal wall for six months. It radiates from there to pubic symphysis and across to ischial tuberosity and down back of thigh. It hurts to palpate just inside the vaginal wall against the bone. It hurts to sit or wear tight jeans. All MRI scan show nothing wrong. bloods are clear. Chiro treatment is not making any difference. I am 52. had hysterectomy and had no kids. let me know if you work it out</description>
		<content:encoded><![CDATA[<p>Hi I have had a pain in the right side of the vaginal wall for six months. It radiates from there to pubic symphysis and across to ischial tuberosity and down back of thigh. It hurts to palpate just inside the vaginal wall against the bone. It hurts to sit or wear tight jeans. All MRI scan show nothing wrong. bloods are clear. Chiro treatment is not making any difference. I am 52. had hysterectomy and had no kids. let me know if you work it out</p>
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		<title>By: Elizabeth</title>
		<link>http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html/comment-page-1#comment-15651</link>
		<dc:creator>Elizabeth</dc:creator>
		<pubDate>Mon, 08 Nov 2010 13:23:30 +0000</pubDate>
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		<description>I was the originator of this post, and we&#039;re still currently working to find a diagnosis and treatment.  The patient has undergone repeat CT&#039;s, bloodwork, and a EMG/NCT.  Once again, all have been negative.  After a trial of physical therapy that didn&#039;t help, the patient was referred to an interventional radiologist to recieve a pudendal nerve block. It was thought that the patient may have a rare form of neuralgia or nerve entrapment. 

The interventional radiologist has attempted 3 series of nerve blocks, in which the patient received exactly 1 month of relief after the second series.  After the third set, the patient was experiencing several side effects that prevented continuation of the nerve blocks. The only difference in the second procedure is that the doctor did several blocks directly in the groin area rather than just the spinal area.

In addition to the blocks, the patient was given many medications for trial purposes from the interventional radiologist.  These medications have either not helped or caused the patient to have poor reactions.  Medications tried: Gabapentin, Lyrica, Robaxin, Zanaflex, , Amitriptyline, Savella, and Lodine.

Recently the patient underwent a colonoscopy to further evaluate the bowel wall thickening and inflammation findings on the previous abdominal CT&#039;s, in which the findings were also negative.

Currently, the patient is taking Vicoprofen and Lodine to manage the pain, however, over the past week (since starting the Lodine) the patient&#039;s pain has increased.  Before the Lodine was started the patient would wake up in very mild pain that would only increase with the normal aggrivators as before: sitting, driving, standing too long, too much physical activity.  Whereas now, the patient wakes up to similar, moderate to severe, pain that she went to sleep to.  

Patient states that this pain is present if she takes her pain medications the previous night or not.  She states that the pain meds help in reducing the pain long enough to help her fall asleep, but unlike previously, even after rest, the pain is still moderate to severe where only the Vicoprofen seems to help manage.

Side Note:  Pt hasn&#039;t been working since March 2010 due to the pain interfering with her &quot;every attempt to do anything that involves more than just a few minutes in one position&quot;. She is highly eager to &quot;return to work and life in general&quot;.  Patient states that the only way she is able to get anything done is after the Vicoprofen has been taken, and then that only lasts for a couple of hours.  The patient still has complaints of fatigue, but that is the only other complaint besides pain. The pain location has not changed much and currently includes: right groin, hip, right vaginal, right genitalia, right pelvic (to midline), right upper backside thigh (about three finger width from buttocks crease), and right sided lumbar/sacroiliac joint running down to lower buttocks.  Pt states that there are four specific points of tenderness along the line running down her back side... to the right of L4-5 area, Sacroiliac joint, just to the right of the mid sacrum, and just below(bottom inner crease of buttocks) and to the right of the coccyx.

It seems that all of the above suggestions have been looked at and been unfounded.  I believe that the plan after trying the Lodine, was to go in for one last set of nerve blocks (including the groin area) and it is unknown from there. Any additional help or ideas would greatly be appreciated!

Thanks for your time, interest, ideas, comments, and help.</description>
		<content:encoded><![CDATA[<p>I was the originator of this post, and we&#8217;re still currently working to find a diagnosis and treatment.  The patient has undergone repeat CT&#8217;s, bloodwork, and a EMG/NCT.  Once again, all have been negative.  After a trial of physical therapy that didn&#8217;t help, the patient was referred to an interventional radiologist to recieve a pudendal nerve block. It was thought that the patient may have a rare form of neuralgia or nerve entrapment. </p>
<p>The interventional radiologist has attempted 3 series of nerve blocks, in which the patient received exactly 1 month of relief after the second series.  After the third set, the patient was experiencing several side effects that prevented continuation of the nerve blocks. The only difference in the second procedure is that the doctor did several blocks directly in the groin area rather than just the spinal area.</p>
<p>In addition to the blocks, the patient was given many medications for trial purposes from the interventional radiologist.  These medications have either not helped or caused the patient to have poor reactions.  Medications tried: Gabapentin, Lyrica, Robaxin, Zanaflex, , Amitriptyline, Savella, and Lodine.</p>
<p>Recently the patient underwent a colonoscopy to further evaluate the bowel wall thickening and inflammation findings on the previous abdominal CT&#8217;s, in which the findings were also negative.</p>
<p>Currently, the patient is taking Vicoprofen and Lodine to manage the pain, however, over the past week (since starting the Lodine) the patient&#8217;s pain has increased.  Before the Lodine was started the patient would wake up in very mild pain that would only increase with the normal aggrivators as before: sitting, driving, standing too long, too much physical activity.  Whereas now, the patient wakes up to similar, moderate to severe, pain that she went to sleep to.  </p>
<p>Patient states that this pain is present if she takes her pain medications the previous night or not.  She states that the pain meds help in reducing the pain long enough to help her fall asleep, but unlike previously, even after rest, the pain is still moderate to severe where only the Vicoprofen seems to help manage.</p>
<p>Side Note:  Pt hasn&#8217;t been working since March 2010 due to the pain interfering with her &#8220;every attempt to do anything that involves more than just a few minutes in one position&#8221;. She is highly eager to &#8220;return to work and life in general&#8221;.  Patient states that the only way she is able to get anything done is after the Vicoprofen has been taken, and then that only lasts for a couple of hours.  The patient still has complaints of fatigue, but that is the only other complaint besides pain. The pain location has not changed much and currently includes: right groin, hip, right vaginal, right genitalia, right pelvic (to midline), right upper backside thigh (about three finger width from buttocks crease), and right sided lumbar/sacroiliac joint running down to lower buttocks.  Pt states that there are four specific points of tenderness along the line running down her back side&#8230; to the right of L4-5 area, Sacroiliac joint, just to the right of the mid sacrum, and just below(bottom inner crease of buttocks) and to the right of the coccyx.</p>
<p>It seems that all of the above suggestions have been looked at and been unfounded.  I believe that the plan after trying the Lodine, was to go in for one last set of nerve blocks (including the groin area) and it is unknown from there. Any additional help or ideas would greatly be appreciated!</p>
<p>Thanks for your time, interest, ideas, comments, and help.</p>
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		<title>By: Chips Downey</title>
		<link>http://colonhealthquestions.com/mystery-diagnosis-needed-unexplained-groin-pelvic-and-bone-pain-please-help.html/comment-page-1#comment-15138</link>
		<dc:creator>Chips Downey</dc:creator>
		<pubDate>Tue, 26 Oct 2010 20:46:30 +0000</pubDate>
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		<description>I agree with douglas, but would love to know what the current situation is?  If it is a tendon issue, RICE is the best medicine.</description>
		<content:encoded><![CDATA[<p>I agree with douglas, but would love to know what the current situation is?  If it is a tendon issue, RICE is the best medicine.</p>
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